The 411 by Maria:
In starting this book I was familiar with the name Victoria Jackson the make up artist. I wanted a No Make Up Make Up Kit in the worst way. What I didn't know was anything about NMO Neuromyeltis Optica Spectrum Disease.
When Ali, Victoria's 14 year old daughter ended up with an eye pain that didn't go away, she took her to an eye doctor like any good parent would do. There was inflammation all along the nerve. After many tests and many doctors they received a diagnosis of NMO (please see the foundation for exact information on this very rare disease).
What I loved and got out of this book is that love conquers all. Victoria, the mother, wanted to do everything and did, she moved mountains to understand and research this disease that was so rare there wasn't much information about it. Victoria the business woman, organized a foundation so that no other family would be unaware of the resources for NMO.
Ali, trusts and realizes how much her parents love her and would do whatever they could to help her. Her trust was so much so that in the beginning she didn't even want to know what she had.
The book is well written and in each of their voices.
My heart broke so many times for the whole family as they dealt with the unknown but especially for Victoria who wrote that she would do anything to have had the disease hit her instead of her daughter as I imagine most moms would do.
The Jackson-Guthy family are very lucky to have each other and are proof that if a family sticks together they can fight anything.
In starting this book I was familiar with the name Victoria Jackson the make up artist. I wanted a No Make Up Make Up Kit in the worst way. What I didn't know was anything about NMO Neuromyeltis Optica Spectrum Disease.
When Ali, Victoria's 14 year old daughter ended up with an eye pain that didn't go away, she took her to an eye doctor like any good parent would do. There was inflammation all along the nerve. After many tests and many doctors they received a diagnosis of NMO (please see the foundation for exact information on this very rare disease).
What I loved and got out of this book is that love conquers all. Victoria, the mother, wanted to do everything and did, she moved mountains to understand and research this disease that was so rare there wasn't much information about it. Victoria the business woman, organized a foundation so that no other family would be unaware of the resources for NMO.
Ali, trusts and realizes how much her parents love her and would do whatever they could to help her. Her trust was so much so that in the beginning she didn't even want to know what she had.
The book is well written and in each of their voices.
My heart broke so many times for the whole family as they dealt with the unknown but especially for Victoria who wrote that she would do anything to have had the disease hit her instead of her daughter as I imagine most moms would do.
The Jackson-Guthy family are very lucky to have each other and are proof that if a family sticks together they can fight anything.
F
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